Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia

Selwyn Stanley, S Balakrishnan, S Ilangovan

Research output: Contribution to journalArticle

85 Downloads (Pure)

Abstract

Background: Caregiving in schizophrenia is a demanding and exhausting activity that challenges the physical and emotional resources of family caregivers. In traditional societies such as India, this is further compounded by illiteracy, ignorance and religious and cultural explanations attributed to mental illness.

Aims: This study aimed to assess primary caregivers of persons with schizophrenia in terms of their perceived burden, manifestation of psychological distress and quality of life (QOL).

Methods: The study used a quantitative cross-sectional design and survey methodology to collect data from caregivers in a hospital setting in Thanjavur, India. Standardized instruments were used to collect data from patients and their caregivers.

Results: High perceived burden and lower QOL were seen in the majority of caregivers. They also manifested high levels of anxiety and depression. Patient characteristics such as age, gender, symptoms and duration of illness did not influence the perceived burden of caregivers, while positive and negative symptoms and the duration of illness were correlated with their QOL.

Conclusions: Findings indicate the need for intervention for family caregivers to enable them cope more effectively with the demands of caregiving. Psychoeducation and participation in peer support groups are advocated as low resource and effective outcome strategies for caregivers in India.
Original languageEnglish
Pages (from-to)134-141
Number of pages7
JournalJournal of Mental Health
Volume26
Issue number2
DOIs
Publication statusPublished - 28 Feb 2017

Fingerprint

Caregivers
Schizophrenia
Quality of Life
Psychology
India
Peer Group
Self-Help Groups
Anxiety
Cross-Sectional Studies
Exercise
Depression

Cite this

Stanley, Selwyn ; Balakrishnan, S ; Ilangovan, S. / Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia. In: Journal of Mental Health. 2017 ; Vol. 26, No. 2. pp. 134-141.
@article{ba6a1e5acc88402199861c585ccc8d91,
title = "Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia",
abstract = "Background: Caregiving in schizophrenia is a demanding and exhausting activity that challenges the physical and emotional resources of family caregivers. In traditional societies such as India, this is further compounded by illiteracy, ignorance and religious and cultural explanations attributed to mental illness.Aims: This study aimed to assess primary caregivers of persons with schizophrenia in terms of their perceived burden, manifestation of psychological distress and quality of life (QOL).Methods: The study used a quantitative cross-sectional design and survey methodology to collect data from caregivers in a hospital setting in Thanjavur, India. Standardized instruments were used to collect data from patients and their caregivers.Results: High perceived burden and lower QOL were seen in the majority of caregivers. They also manifested high levels of anxiety and depression. Patient characteristics such as age, gender, symptoms and duration of illness did not influence the perceived burden of caregivers, while positive and negative symptoms and the duration of illness were correlated with their QOL.Conclusions: Findings indicate the need for intervention for family caregivers to enable them cope more effectively with the demands of caregiving. Psychoeducation and participation in peer support groups are advocated as low resource and effective outcome strategies for caregivers in India.",
author = "Selwyn Stanley and S Balakrishnan and S Ilangovan",
note = "12 months embargo",
year = "2017",
month = "2",
day = "28",
doi = "10.1080/09638237.2016.1276537",
language = "English",
volume = "26",
pages = "134--141",
journal = "Journal of Mental Health",
issn = "0963-8237",
publisher = "Carfax International Publishers",
number = "2",

}

Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia. / Stanley, Selwyn; Balakrishnan, S; Ilangovan, S.

In: Journal of Mental Health, Vol. 26, No. 2, 28.02.2017, p. 134-141.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia

AU - Stanley, Selwyn

AU - Balakrishnan, S

AU - Ilangovan, S

N1 - 12 months embargo

PY - 2017/2/28

Y1 - 2017/2/28

N2 - Background: Caregiving in schizophrenia is a demanding and exhausting activity that challenges the physical and emotional resources of family caregivers. In traditional societies such as India, this is further compounded by illiteracy, ignorance and religious and cultural explanations attributed to mental illness.Aims: This study aimed to assess primary caregivers of persons with schizophrenia in terms of their perceived burden, manifestation of psychological distress and quality of life (QOL).Methods: The study used a quantitative cross-sectional design and survey methodology to collect data from caregivers in a hospital setting in Thanjavur, India. Standardized instruments were used to collect data from patients and their caregivers.Results: High perceived burden and lower QOL were seen in the majority of caregivers. They also manifested high levels of anxiety and depression. Patient characteristics such as age, gender, symptoms and duration of illness did not influence the perceived burden of caregivers, while positive and negative symptoms and the duration of illness were correlated with their QOL.Conclusions: Findings indicate the need for intervention for family caregivers to enable them cope more effectively with the demands of caregiving. Psychoeducation and participation in peer support groups are advocated as low resource and effective outcome strategies for caregivers in India.

AB - Background: Caregiving in schizophrenia is a demanding and exhausting activity that challenges the physical and emotional resources of family caregivers. In traditional societies such as India, this is further compounded by illiteracy, ignorance and religious and cultural explanations attributed to mental illness.Aims: This study aimed to assess primary caregivers of persons with schizophrenia in terms of their perceived burden, manifestation of psychological distress and quality of life (QOL).Methods: The study used a quantitative cross-sectional design and survey methodology to collect data from caregivers in a hospital setting in Thanjavur, India. Standardized instruments were used to collect data from patients and their caregivers.Results: High perceived burden and lower QOL were seen in the majority of caregivers. They also manifested high levels of anxiety and depression. Patient characteristics such as age, gender, symptoms and duration of illness did not influence the perceived burden of caregivers, while positive and negative symptoms and the duration of illness were correlated with their QOL.Conclusions: Findings indicate the need for intervention for family caregivers to enable them cope more effectively with the demands of caregiving. Psychoeducation and participation in peer support groups are advocated as low resource and effective outcome strategies for caregivers in India.

U2 - 10.1080/09638237.2016.1276537

DO - 10.1080/09638237.2016.1276537

M3 - Article

VL - 26

SP - 134

EP - 141

JO - Journal of Mental Health

JF - Journal of Mental Health

SN - 0963-8237

IS - 2

ER -