"My tools for care": a self-administered online intervention to support family carers of older persons with dementia

Shelley Peacock, Wendy Duggleby, Rhoda MacRae

Research output: Contribution to conferencePoster

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Abstract

BackgroundConsidering the important role of family carers of persons living with some form of dementia, it is critically important to support carers. Current examples of interventions that have been evaluated to support family carers (largely based on stress and burden theories) include training and education sessions or coping and stress reduction programs led by healthcare professionals. These interventions have shown limited reduction of burden for family carers. Given the journey family carers undertake, transition theory provides an appropriate and alternative guide to understand the needs and experience of family carers of persons living with some form of dementia. 
Aim of the researchBased on transition theory, the aim of our research was to develop an online toolkit to support family carers of persons with some form of dementia and other chronic conditions living in the community. The resulting toolkit, known as the My Tools for Care, is an online selfadministered intervention that provides resources and education to support family carers. 
ApproachA mixed methods pragmatic randomized control trial was conducted with 185 participants (from Alberta and Ontario Canada) randomly assigned to a treatment or control group. My Tools for Care was evaluated for its impact on carer self-efficacy, hope, and quality of life. Outcome: My Tools for Care was perceived to help participants to reflect on: their caregiving journey, how far they’ve come, and what supports they have available to them. Participants appreciated that the tool provided information and education for the carer and some noted that the tool helped to reflect on the importance of self-care. 
ConclusionsMy Tools for Care is an innovative online intervention that is cost-effective, flexible to the needs of the carer, and offers resources and educational support for family carers of persons living with some form of dementia and other chronic conditions.
Original languageEnglish
Publication statusPublished - 3 Jun 2019
EventAlzheimer Scotland Annual conference 2019 - EICC, Edinburgh, United Kingdom
Duration: 3 Jun 2019 → …

Conference

ConferenceAlzheimer Scotland Annual conference 2019
Country/TerritoryUnited Kingdom
CityEdinburgh
Period3/06/19 → …

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