“I Know Who I Am; the Real Me, and That Will Come Back”: The Importance of Relational Practice in Improving Outcomes for Carers of People With Dementia

Research output: Contribution to journalArticle

54 Downloads (Pure)

Abstract

Effective support to carers of people with dementia can be critical to maintain quality of life for people with dementia and their families and to sustain the future of health and care systems. Qualitative interviews were undertaken with 14 carers of people with dementia across Scotland, and the data were analysed to identify the outcomes important to the carers. The importance of relationships emerged as the core theme, including relationship with the person with dementia, family members, other carers, and professionals. Although not evident in the literature, the authors noted that the concept of self-relationship was important to carers in the context of changing relationships with others. A multilayered approach to understanding relationships, and an approach to engagement that enables carers to define and express their priorities, is necessary to fit with the relational nature of care.
Original languageEnglish
Number of pages22
JournalIllness, Crisis & Loss
Early online date3 Apr 2017
DOIs
Publication statusE-pub ahead of print - 3 Apr 2017

Fingerprint

dementia
Caregivers
Dementia
qualitative interview
family member
quality of life
Scotland
human being
health
Quality of Life
Interviews
Delivery of Health Care

Cite this

@article{1371171779f045feb738c6b15d6cf94c,
title = "“I Know Who I Am; the Real Me, and That Will Come Back”: The Importance of Relational Practice in Improving Outcomes for Carers of People With Dementia",
abstract = "Effective support to carers of people with dementia can be critical to maintain quality of life for people with dementia and their families and to sustain the future of health and care systems. Qualitative interviews were undertaken with 14 carers of people with dementia across Scotland, and the data were analysed to identify the outcomes important to the carers. The importance of relationships emerged as the core theme, including relationship with the person with dementia, family members, other carers, and professionals. Although not evident in the literature, the authors noted that the concept of self-relationship was important to carers in the context of changing relationships with others. A multilayered approach to understanding relationships, and an approach to engagement that enables carers to define and express their priorities, is necessary to fit with the relational nature of care.",
author = "Tamsin MacBride and Emma Miller and Belinda Dewar",
note = "No embargo",
year = "2017",
month = "4",
day = "3",
doi = "10.1177/1054137317700061",
language = "English",
journal = "Illness, Crisis & Loss",
issn = "1054-1373",
publisher = "SAGE Publications",

}

TY - JOUR

T1 - “I Know Who I Am; the Real Me, and That Will Come Back”

T2 - The Importance of Relational Practice in Improving Outcomes for Carers of People With Dementia

AU - MacBride, Tamsin

AU - Miller, Emma

AU - Dewar, Belinda

N1 - No embargo

PY - 2017/4/3

Y1 - 2017/4/3

N2 - Effective support to carers of people with dementia can be critical to maintain quality of life for people with dementia and their families and to sustain the future of health and care systems. Qualitative interviews were undertaken with 14 carers of people with dementia across Scotland, and the data were analysed to identify the outcomes important to the carers. The importance of relationships emerged as the core theme, including relationship with the person with dementia, family members, other carers, and professionals. Although not evident in the literature, the authors noted that the concept of self-relationship was important to carers in the context of changing relationships with others. A multilayered approach to understanding relationships, and an approach to engagement that enables carers to define and express their priorities, is necessary to fit with the relational nature of care.

AB - Effective support to carers of people with dementia can be critical to maintain quality of life for people with dementia and their families and to sustain the future of health and care systems. Qualitative interviews were undertaken with 14 carers of people with dementia across Scotland, and the data were analysed to identify the outcomes important to the carers. The importance of relationships emerged as the core theme, including relationship with the person with dementia, family members, other carers, and professionals. Although not evident in the literature, the authors noted that the concept of self-relationship was important to carers in the context of changing relationships with others. A multilayered approach to understanding relationships, and an approach to engagement that enables carers to define and express their priorities, is necessary to fit with the relational nature of care.

U2 - 10.1177/1054137317700061

DO - 10.1177/1054137317700061

M3 - Article

JO - Illness, Crisis & Loss

JF - Illness, Crisis & Loss

SN - 1054-1373

ER -