How young people cope with chronic kidney disease: literature review

Shahid Muhammad, Helen Noble, Pauline Banks, Amanda Carson, Colin R Martin

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

BACKGROUND: Chronic kidney disease (CKD) is a complex, long-term condition occurring in all age groups. It has been reported that the incidence of renal replacement therapy in young people is 7-8 per million population. Notwithstanding those individuals who may receive a donor kidney, many individuals may be disenfranchised by perceptions of helplessness and feelings of powerlessness against a backdrop of diminished health outlook, consequently impacting on capacity for effective coping.

AIM: The aim of this review is to explore how young people cope with CKD.

METHODS: Three hundred and thirty-seven abstracts were identified. Sixty-three papers were cross-examined using a Critical Appraisal Skills Checklist Tool.

RESULTS: Young people face various demands; these may be episodic or ongoing, depending on health and circumstance. The themes this review uncovers are: 'Lack of a Coping Definition'; 'Coping Strategies in Young People'; and 'Barriers to the Understanding of Coping in Young People'.

CONCLUSION: More qualitative research is vital to retrieve 'real-life' perceptions from young people coping with kidney disease to identify how care should be made more explicit for them.

Original languageEnglish
Pages (from-to)182-90
Number of pages9
JournalJournal of Renal Care
Volume38
Issue number4
DOIs
Publication statusPublished - Dec 2012

Fingerprint

Chronic Renal Insufficiency
Renal Replacement Therapy
Qualitative Research
Health
Kidney Diseases
Checklist
Emotions
Age Groups
Tissue Donors
Kidney
Incidence
Population

Keywords

  • Adaptation, Psychological
  • Humans
  • Qualitative Research
  • Quality of Life
  • Renal Insufficiency, Chronic

Cite this

@article{fe0d0d934df44b96888b2818605b9606,
title = "How young people cope with chronic kidney disease: literature review",
abstract = "BACKGROUND: Chronic kidney disease (CKD) is a complex, long-term condition occurring in all age groups. It has been reported that the incidence of renal replacement therapy in young people is 7-8 per million population. Notwithstanding those individuals who may receive a donor kidney, many individuals may be disenfranchised by perceptions of helplessness and feelings of powerlessness against a backdrop of diminished health outlook, consequently impacting on capacity for effective coping.AIM: The aim of this review is to explore how young people cope with CKD.METHODS: Three hundred and thirty-seven abstracts were identified. Sixty-three papers were cross-examined using a Critical Appraisal Skills Checklist Tool.RESULTS: Young people face various demands; these may be episodic or ongoing, depending on health and circumstance. The themes this review uncovers are: 'Lack of a Coping Definition'; 'Coping Strategies in Young People'; and 'Barriers to the Understanding of Coping in Young People'.CONCLUSION: More qualitative research is vital to retrieve 'real-life' perceptions from young people coping with kidney disease to identify how care should be made more explicit for them.",
keywords = "Adaptation, Psychological, Humans, Qualitative Research, Quality of Life, Renal Insufficiency, Chronic",
author = "Shahid Muhammad and Helen Noble and Pauline Banks and Amanda Carson and Martin, {Colin R}",
note = "2012 European Dialysis and Transplant Nurses Association/European Renal Care Association",
year = "2012",
month = "12",
doi = "10.1111/j.1755-6686.2012.00324.x",
language = "English",
volume = "38",
pages = "182--90",
journal = "Journal of Renal Care",
issn = "1755-6678",
publisher = "Wiley",
number = "4",

}

How young people cope with chronic kidney disease : literature review. / Muhammad, Shahid; Noble, Helen; Banks, Pauline; Carson, Amanda; Martin, Colin R.

In: Journal of Renal Care, Vol. 38, No. 4, 12.2012, p. 182-90.

Research output: Contribution to journalArticle

TY - JOUR

T1 - How young people cope with chronic kidney disease

T2 - literature review

AU - Muhammad, Shahid

AU - Noble, Helen

AU - Banks, Pauline

AU - Carson, Amanda

AU - Martin, Colin R

N1 - 2012 European Dialysis and Transplant Nurses Association/European Renal Care Association

PY - 2012/12

Y1 - 2012/12

N2 - BACKGROUND: Chronic kidney disease (CKD) is a complex, long-term condition occurring in all age groups. It has been reported that the incidence of renal replacement therapy in young people is 7-8 per million population. Notwithstanding those individuals who may receive a donor kidney, many individuals may be disenfranchised by perceptions of helplessness and feelings of powerlessness against a backdrop of diminished health outlook, consequently impacting on capacity for effective coping.AIM: The aim of this review is to explore how young people cope with CKD.METHODS: Three hundred and thirty-seven abstracts were identified. Sixty-three papers were cross-examined using a Critical Appraisal Skills Checklist Tool.RESULTS: Young people face various demands; these may be episodic or ongoing, depending on health and circumstance. The themes this review uncovers are: 'Lack of a Coping Definition'; 'Coping Strategies in Young People'; and 'Barriers to the Understanding of Coping in Young People'.CONCLUSION: More qualitative research is vital to retrieve 'real-life' perceptions from young people coping with kidney disease to identify how care should be made more explicit for them.

AB - BACKGROUND: Chronic kidney disease (CKD) is a complex, long-term condition occurring in all age groups. It has been reported that the incidence of renal replacement therapy in young people is 7-8 per million population. Notwithstanding those individuals who may receive a donor kidney, many individuals may be disenfranchised by perceptions of helplessness and feelings of powerlessness against a backdrop of diminished health outlook, consequently impacting on capacity for effective coping.AIM: The aim of this review is to explore how young people cope with CKD.METHODS: Three hundred and thirty-seven abstracts were identified. Sixty-three papers were cross-examined using a Critical Appraisal Skills Checklist Tool.RESULTS: Young people face various demands; these may be episodic or ongoing, depending on health and circumstance. The themes this review uncovers are: 'Lack of a Coping Definition'; 'Coping Strategies in Young People'; and 'Barriers to the Understanding of Coping in Young People'.CONCLUSION: More qualitative research is vital to retrieve 'real-life' perceptions from young people coping with kidney disease to identify how care should be made more explicit for them.

KW - Adaptation, Psychological

KW - Humans

KW - Qualitative Research

KW - Quality of Life

KW - Renal Insufficiency, Chronic

U2 - 10.1111/j.1755-6686.2012.00324.x

DO - 10.1111/j.1755-6686.2012.00324.x

M3 - Article

C2 - 23176577

VL - 38

SP - 182

EP - 190

JO - Journal of Renal Care

JF - Journal of Renal Care

SN - 1755-6678

IS - 4

ER -