How young people cope with chronic kidney disease: literature review

Shahid Muhammad, Helen Noble, Pauline Banks, Amanda Carson, Colin R Martin

Research output: Contribution to journalArticlepeer-review

5 Citations (Scopus)


BACKGROUND: Chronic kidney disease (CKD) is a complex, long-term condition occurring in all age groups. It has been reported that the incidence of renal replacement therapy in young people is 7-8 per million population. Notwithstanding those individuals who may receive a donor kidney, many individuals may be disenfranchised by perceptions of helplessness and feelings of powerlessness against a backdrop of diminished health outlook, consequently impacting on capacity for effective coping.

AIM: The aim of this review is to explore how young people cope with CKD.

METHODS: Three hundred and thirty-seven abstracts were identified. Sixty-three papers were cross-examined using a Critical Appraisal Skills Checklist Tool.

RESULTS: Young people face various demands; these may be episodic or ongoing, depending on health and circumstance. The themes this review uncovers are: 'Lack of a Coping Definition'; 'Coping Strategies in Young People'; and 'Barriers to the Understanding of Coping in Young People'.

CONCLUSION: More qualitative research is vital to retrieve 'real-life' perceptions from young people coping with kidney disease to identify how care should be made more explicit for them.

Original languageEnglish
Pages (from-to)182-90
Number of pages9
JournalJournal of Renal Care
Issue number4
Publication statusPublished - Dec 2012


  • Adaptation, Psychological
  • Humans
  • Qualitative Research
  • Quality of Life
  • Renal Insufficiency, Chronic


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