Dementia palliare best practice statement: interprofessional experiential learning solutions: equipping the qualified dementia workforce to champion evidence informed improvement to advanced dementia care and family caring

Iva Holmerova, Anna Waugh, Rhoda MacRae, Radka Veprkova, Asa Sandvide, Elizabeth Hanson, Graham Jackson, Karen Watchman, Debbie Tolson

Research output: Contribution to conferencePaper

Abstract

Introduction
The Dementia Palliare project aims to strengthen interprofessional collaboration in dementia care; this will be facilitated through a virtual international Community of Practice (CoP). This learning environment will bring together people with a common interest to share and learn from one another to champion evidence
informed improvements in advanced dementia care and family caring. Dementia Palliare is a new concept about positive practice development around the support of a person with advanced but not end stage dementia, who has limited opportunities for self-realisation and is increasingly reliant on the support of others for their health and wellbeing. The Best Practice Statement is a key objective of the ERASMUS+ Dementia Palliare project and a base
for educational modules.

Methods
The Best Practice Statement is informed by an integrative literature review, a dementia policy review and 22 in-depth case studies on the experience of people with dementia, their family and friends and professional staff in seven countries and an educational gap analysis. The executive summaries of these reports are available
to view at http://www.uws.ac.uk/palliareproject/

Results
Six main areas for practice and education were identified: Protecting rights, dignity and inclusion. Future planning for Dementia Palliare. Managing symptoms and keeping well in Dementia Palliare. Living the best life possible. Support for Family and friends. Advancing Dementia Palliare Practice.

Conclusion
Best Practice Statement is intended to serve as a guide to promote a consistent and cohesive approach to care in Dementia Palliare. The primary target audience for this statement are professionals (who are qualified to EQF level 6 or above) working with people who have advanced dementia and their family and friends,
in any community, health or social care setting. It informs the development of three interprofessional learning modules focused on equipping the qualified dementia workforce to champion change based on an experiential learning framework.
Original languageEnglish
Pages81-81
Number of pages1
Publication statusPublished - 21 Apr 2016
Event31st International Conference of Alzheimer's Disease International: Dementia: Global Perspective, Local Solutions - Budapest Congress Center, Budapest, Hungary
Duration: 21 Apr 201624 Apr 2016
https://www.alz.co.uk/ADI-conference-2016 (Conference website)

Conference

Conference31st International Conference of Alzheimer's Disease International
CountryHungary
CityBudapest
Period21/04/1624/04/16
Internet address

Fingerprint

Problem-Based Learning
Practice Guidelines
Dementia
Learning
Health

Keywords

  • advanced dementia
  • education
  • best practice statement

Cite this

Holmerova, Iva ; Waugh, Anna ; MacRae, Rhoda ; Veprkova, Radka ; Sandvide, Asa ; Hanson, Elizabeth ; Jackson, Graham ; Watchman, Karen ; Tolson, Debbie. / Dementia palliare best practice statement : interprofessional experiential learning solutions: equipping the qualified dementia workforce to champion evidence informed improvement to advanced dementia care and family caring. Paper presented at 31st International Conference of Alzheimer's Disease International, Budapest, Hungary.1 p.
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abstract = "IntroductionThe Dementia Palliare project aims to strengthen interprofessional collaboration in dementia care; this will be facilitated through a virtual international Community of Practice (CoP). This learning environment will bring together people with a common interest to share and learn from one another to champion evidenceinformed improvements in advanced dementia care and family caring. Dementia Palliare is a new concept about positive practice development around the support of a person with advanced but not end stage dementia, who has limited opportunities for self-realisation and is increasingly reliant on the support of others for their health and wellbeing. The Best Practice Statement is a key objective of the ERASMUS+ Dementia Palliare project and a basefor educational modules.MethodsThe Best Practice Statement is informed by an integrative literature review, a dementia policy review and 22 in-depth case studies on the experience of people with dementia, their family and friends and professional staff in seven countries and an educational gap analysis. The executive summaries of these reports are availableto view at http://www.uws.ac.uk/palliareproject/ ResultsSix main areas for practice and education were identified: Protecting rights, dignity and inclusion. Future planning for Dementia Palliare. Managing symptoms and keeping well in Dementia Palliare. Living the best life possible. Support for Family and friends. Advancing Dementia Palliare Practice.ConclusionBest Practice Statement is intended to serve as a guide to promote a consistent and cohesive approach to care in Dementia Palliare. The primary target audience for this statement are professionals (who are qualified to EQF level 6 or above) working with people who have advanced dementia and their family and friends,in any community, health or social care setting. It informs the development of three interprofessional learning modules focused on equipping the qualified dementia workforce to champion change based on an experiential learning framework.",
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Holmerova, I, Waugh, A, MacRae, R, Veprkova, R, Sandvide, A, Hanson, E, Jackson, G, Watchman, K & Tolson, D 2016, 'Dementia palliare best practice statement: interprofessional experiential learning solutions: equipping the qualified dementia workforce to champion evidence informed improvement to advanced dementia care and family caring' Paper presented at 31st International Conference of Alzheimer's Disease International, Budapest, Hungary, 21/04/16 - 24/04/16, pp. 81-81.

Dementia palliare best practice statement : interprofessional experiential learning solutions: equipping the qualified dementia workforce to champion evidence informed improvement to advanced dementia care and family caring. / Holmerova, Iva; Waugh, Anna; MacRae, Rhoda; Veprkova, Radka; Sandvide, Asa; Hanson, Elizabeth; Jackson, Graham; Watchman, Karen; Tolson, Debbie.

2016. 81-81 Paper presented at 31st International Conference of Alzheimer's Disease International, Budapest, Hungary.

Research output: Contribution to conferencePaper

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T1 - Dementia palliare best practice statement

T2 - interprofessional experiential learning solutions: equipping the qualified dementia workforce to champion evidence informed improvement to advanced dementia care and family caring

AU - Holmerova, Iva

AU - Waugh, Anna

AU - MacRae, Rhoda

AU - Veprkova, Radka

AU - Sandvide, Asa

AU - Hanson, Elizabeth

AU - Jackson, Graham

AU - Watchman, Karen

AU - Tolson, Debbie

PY - 2016/4/21

Y1 - 2016/4/21

N2 - IntroductionThe Dementia Palliare project aims to strengthen interprofessional collaboration in dementia care; this will be facilitated through a virtual international Community of Practice (CoP). This learning environment will bring together people with a common interest to share and learn from one another to champion evidenceinformed improvements in advanced dementia care and family caring. Dementia Palliare is a new concept about positive practice development around the support of a person with advanced but not end stage dementia, who has limited opportunities for self-realisation and is increasingly reliant on the support of others for their health and wellbeing. The Best Practice Statement is a key objective of the ERASMUS+ Dementia Palliare project and a basefor educational modules.MethodsThe Best Practice Statement is informed by an integrative literature review, a dementia policy review and 22 in-depth case studies on the experience of people with dementia, their family and friends and professional staff in seven countries and an educational gap analysis. The executive summaries of these reports are availableto view at http://www.uws.ac.uk/palliareproject/ ResultsSix main areas for practice and education were identified: Protecting rights, dignity and inclusion. Future planning for Dementia Palliare. Managing symptoms and keeping well in Dementia Palliare. Living the best life possible. Support for Family and friends. Advancing Dementia Palliare Practice.ConclusionBest Practice Statement is intended to serve as a guide to promote a consistent and cohesive approach to care in Dementia Palliare. The primary target audience for this statement are professionals (who are qualified to EQF level 6 or above) working with people who have advanced dementia and their family and friends,in any community, health or social care setting. It informs the development of three interprofessional learning modules focused on equipping the qualified dementia workforce to champion change based on an experiential learning framework.

AB - IntroductionThe Dementia Palliare project aims to strengthen interprofessional collaboration in dementia care; this will be facilitated through a virtual international Community of Practice (CoP). This learning environment will bring together people with a common interest to share and learn from one another to champion evidenceinformed improvements in advanced dementia care and family caring. Dementia Palliare is a new concept about positive practice development around the support of a person with advanced but not end stage dementia, who has limited opportunities for self-realisation and is increasingly reliant on the support of others for their health and wellbeing. The Best Practice Statement is a key objective of the ERASMUS+ Dementia Palliare project and a basefor educational modules.MethodsThe Best Practice Statement is informed by an integrative literature review, a dementia policy review and 22 in-depth case studies on the experience of people with dementia, their family and friends and professional staff in seven countries and an educational gap analysis. The executive summaries of these reports are availableto view at http://www.uws.ac.uk/palliareproject/ ResultsSix main areas for practice and education were identified: Protecting rights, dignity and inclusion. Future planning for Dementia Palliare. Managing symptoms and keeping well in Dementia Palliare. Living the best life possible. Support for Family and friends. Advancing Dementia Palliare Practice.ConclusionBest Practice Statement is intended to serve as a guide to promote a consistent and cohesive approach to care in Dementia Palliare. The primary target audience for this statement are professionals (who are qualified to EQF level 6 or above) working with people who have advanced dementia and their family and friends,in any community, health or social care setting. It informs the development of three interprofessional learning modules focused on equipping the qualified dementia workforce to champion change based on an experiential learning framework.

KW - advanced dementia

KW - education

KW - best practice statement

M3 - Paper

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EP - 81

ER -