Decay, transformation, and growth: meaning-making processes of patients with acute leukemia within the first year after diagnosis or relapse

Constantina Papadopoulou, Bridget Johnston, Markus Themessl-Huber

Research output: Contribution to journalArticle

Abstract

PURPOSE/OBJECTIVES: To explore the processes through which patients construct their meanings of acute leukemia (AL).


RESEARCH APPROACH: An exploratory design was employed using serial, in-depth interviews, guided by Smith's Interpretative Phenomenological Analysis approach.


SETTING: Two inpatient hematology clinics in the United Kingdom.


PARTICIPANTS: 10 adult patients with AL. 


METHODOLOGIC APPROACH: Two serial interviews were conducted with each participant, two to four weeks apart, within the first year of diagnosis or post-relapse.


FINDINGS: AL creates a state of imbalance, which may initiate a search for new equilibrium. Patients' journeys toward making sense of their illness may involve three interchangeable processes.

CONCLUSIONS: Findings of this contextually and methodologically novel study highlight the complex nature of sense-making for patients experiencing AL.


INTERPRETATION: Nurses can take valuable lessons on how to manage the invisibility of AL, enhance trust in healthcare professionals, address the impact of isolation, and facilitate the making-sense processes of patients in ways that favor their short- and long-term psychosocial adjustment.

Original languageEnglish
Pages (from-to)E73-E81
Number of pages9
JournalOncology nursing forum
Volume43
Issue number2
DOIs
Publication statusPublished - Mar 2016

Fingerprint

Leukemia
Recurrence
Growth
Interviews
Social Adjustment
Hematology
Inpatients
Nurses
Delivery of Health Care

Keywords

  • Acute Disease
  • Adaptation, Psychological
  • Adult
  • Aged
  • Aged, 80 and over
  • Chronic Disease
  • Female
  • Humans
  • Leukemia
  • Male
  • Middle Aged
  • Qualitative Research
  • United Kingdom
  • Comparative Study
  • Journal Article

Cite this

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title = "Decay, transformation, and growth: meaning-making processes of patients with acute leukemia within the first year after diagnosis or relapse",
abstract = "PURPOSE/OBJECTIVES: To explore the processes through which patients construct their meanings of acute leukemia (AL).
RESEARCH APPROACH: An exploratory design was employed using serial, in-depth interviews, guided by Smith's Interpretative Phenomenological Analysis approach.
SETTING: Two inpatient hematology clinics in the United Kingdom.
PARTICIPANTS: 10 adult patients with AL. 
METHODOLOGIC APPROACH: Two serial interviews were conducted with each participant, two to four weeks apart, within the first year of diagnosis or post-relapse.
FINDINGS: AL creates a state of imbalance, which may initiate a search for new equilibrium. Patients' journeys toward making sense of their illness may involve three interchangeable processes.CONCLUSIONS: Findings of this contextually and methodologically novel study highlight the complex nature of sense-making for patients experiencing AL.
INTERPRETATION: Nurses can take valuable lessons on how to manage the invisibility of AL, enhance trust in healthcare professionals, address the impact of isolation, and facilitate the making-sense processes of patients in ways that favor their short- and long-term psychosocial adjustment.",
keywords = "Acute Disease, Adaptation, Psychological, Adult, Aged, Aged, 80 and over, Chronic Disease, Female, Humans, Leukemia, Male, Middle Aged, Qualitative Research, United Kingdom, Comparative Study, Journal Article",
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Decay, transformation, and growth : meaning-making processes of patients with acute leukemia within the first year after diagnosis or relapse. / Papadopoulou, Constantina; Johnston, Bridget; Themessl-Huber, Markus.

In: Oncology nursing forum, Vol. 43, No. 2, 03.2016, p. E73-E81.

Research output: Contribution to journalArticle

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AU - Johnston, Bridget

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PY - 2016/3

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N2 - PURPOSE/OBJECTIVES: To explore the processes through which patients construct their meanings of acute leukemia (AL).
RESEARCH APPROACH: An exploratory design was employed using serial, in-depth interviews, guided by Smith's Interpretative Phenomenological Analysis approach.
SETTING: Two inpatient hematology clinics in the United Kingdom.
PARTICIPANTS: 10 adult patients with AL. 
METHODOLOGIC APPROACH: Two serial interviews were conducted with each participant, two to four weeks apart, within the first year of diagnosis or post-relapse.
FINDINGS: AL creates a state of imbalance, which may initiate a search for new equilibrium. Patients' journeys toward making sense of their illness may involve three interchangeable processes.CONCLUSIONS: Findings of this contextually and methodologically novel study highlight the complex nature of sense-making for patients experiencing AL.
INTERPRETATION: Nurses can take valuable lessons on how to manage the invisibility of AL, enhance trust in healthcare professionals, address the impact of isolation, and facilitate the making-sense processes of patients in ways that favor their short- and long-term psychosocial adjustment.

AB - PURPOSE/OBJECTIVES: To explore the processes through which patients construct their meanings of acute leukemia (AL).
RESEARCH APPROACH: An exploratory design was employed using serial, in-depth interviews, guided by Smith's Interpretative Phenomenological Analysis approach.
SETTING: Two inpatient hematology clinics in the United Kingdom.
PARTICIPANTS: 10 adult patients with AL. 
METHODOLOGIC APPROACH: Two serial interviews were conducted with each participant, two to four weeks apart, within the first year of diagnosis or post-relapse.
FINDINGS: AL creates a state of imbalance, which may initiate a search for new equilibrium. Patients' journeys toward making sense of their illness may involve three interchangeable processes.CONCLUSIONS: Findings of this contextually and methodologically novel study highlight the complex nature of sense-making for patients experiencing AL.
INTERPRETATION: Nurses can take valuable lessons on how to manage the invisibility of AL, enhance trust in healthcare professionals, address the impact of isolation, and facilitate the making-sense processes of patients in ways that favor their short- and long-term psychosocial adjustment.

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