Core principles for involving people with dementia in research: innovative practice

Billy Flemington; Agnes Houston; Ethel Jackson; Archie Latta; Brain Malone; Nancy McAdam; David McKenzie; James McKillop; Peter McLaughlin; Robert Murray; Archie Noone; Josie O'Sullivan; Henry Rankin; Ruby Turner; Dot Weaks; Liz Taylor; Sarah Keyes; Nick Jenkins

doi:10.1177/1471301214533255

Core principles for involving people with dementia in research: innovative practice

Billy Flemington, Agnes Houston, Ethel Jackson, Archie Latta, Brain Malone, Nancy McAdam, David McKenzie, James McKillop, Peter McLaughlin, Robert Murray, Archie Noone, Josie O'Sullivan, Henry Rankin, Ruby Turner, Dot Weaks, Liz Taylor, Sarah Keyes, Nick Jenkins

Research output: Contribution to journal › Article › peer-review

49 Citations (Scopus)

Abstract

The Scottish Dementia Working Group Research Sub-group is part of the Scottish Dementia Working Group, an internationally renowned campaigning group of people with dementia. We co-created our core principles for involving people with dementia in research between September and December 2013. The principles address six areas: (i) how people with dementia are valued and involved in research, (ii) lived experience as valid knowledge, (iii) physical and emotional safety, (iv) accessibility of all aspects of research, (v) training for researchers and (vi) the impact of our experiences of time on research processes. Through our core principles, we challenge researchers across all disciplines to re-consider how we and other people with dementia are involved in research as well as how knowledge in dementia research is created.

Original language	English
Pages (from-to)	680-685
Number of pages	6
Journal	Dementia
Volume	13
Issue number	5
DOIs	https://doi.org/10.1177/1471301214533255
Publication status	E-pub ahead of print - 22 May 2014
Externally published	Yes

Keywords

people with dementia
participation
research

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Flemington, B., Houston, A., Jackson, E., Latta, A., Malone, B., McAdam, N., McKenzie, D., McKillop, J., McLaughlin, P., Murray, R., Noone, A., O'Sullivan, J., Rankin, H., Turner, R., Weaks, D., Taylor, L., Keyes, S., & Jenkins, N. (2014). Core principles for involving people with dementia in research: innovative practice. Dementia, 13(5), 680-685. Advance online publication. https://doi.org/10.1177/1471301214533255

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Flemington, B, Houston, A, Jackson, E, Latta, A, Malone, B, McAdam, N, McKenzie, D, McKillop, J, McLaughlin, P, Murray, R, Noone, A, O'Sullivan, J, Rankin, H, Turner, R, Weaks, D, Taylor, L, Keyes, S & Jenkins, N 2014, 'Core principles for involving people with dementia in research: innovative practice', Dementia, vol. 13, no. 5, pp. 680-685. https://doi.org/10.1177/1471301214533255

TY - JOUR

T1 - Core principles for involving people with dementia in research

T2 - innovative practice

AU - Flemington, Billy

AU - Houston, Agnes

AU - Jackson, Ethel

AU - Latta, Archie

AU - Malone, Brain

AU - McAdam, Nancy

AU - McKenzie, David

AU - McKillop, James

AU - McLaughlin, Peter

AU - Murray, Robert

AU - Noone, Archie

AU - O'Sullivan, Josie

AU - Rankin, Henry

AU - Turner, Ruby

AU - Weaks, Dot

AU - Taylor, Liz

AU - Keyes, Sarah

AU - Jenkins, Nick

PY - 2014/5/22

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KW - participation

KW - research

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VL - 13

SP - 680

EP - 685

JO - Dementia

JF - Dementia

IS - 5

ER -

Core principles for involving people with dementia in research: innovative practice

Abstract

Keywords

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