Core principles for involving people with dementia in research: innovative practice

Billy Flemington, Agnes Houston, Ethel Jackson, Archie Latta, Brain Malone, Nancy McAdam, David McKenzie, James McKillop, Peter McLaughlin, Robert Murray, Archie Noone, Josie O'Sullivan, Henry Rankin, Ruby Turner, Dot Weaks, Liz Taylor, Sarah Keyes, Nick Jenkins

Research output: Contribution to journalArticlepeer-review

37 Citations (Scopus)


The Scottish Dementia Working Group Research Sub-group is part of the Scottish Dementia Working Group, an internationally renowned campaigning group of people with dementia. We co-created our core principles for involving people with dementia in research between September and December 2013. The principles address six areas: (i) how people with dementia are valued and involved in research, (ii) lived experience as valid knowledge, (iii) physical and emotional safety, (iv) accessibility of all aspects of research, (v) training for researchers and (vi) the impact of our experiences of time on research processes. Through our core principles, we challenge researchers across all disciplines to re-consider how we and other people with dementia are involved in research as well as how knowledge in dementia research is created.
Original languageEnglish
Pages (from-to)680-685
Number of pages6
Issue number5
Publication statusE-pub ahead of print - 22 May 2014
Externally publishedYes


  • people with dementia
  • participation
  • research


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