Caring burden and quality of life among the caregivers of people living with dementia–a cross-sectional study in Udupi district of Karnataka

Clarita Shynal Martis, Rajeshkrishna Panambur Bhandary, Ramesh Chandrababu, Vani Lakshmi R, Panambur Venkataraya Bhandary, Judith Angelitta Noronha, Jyothi Chakrabarty, Debbie Tolson, Elsa Sanatombi Devi*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

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Abstract

Dementia is a chronic disorder of the brain that affects cognitive performance. The caregivers of individuals with dementia experience a greater burden that affects their Quality of Life (QoL). This cross-sectional study conducted in India was designed to assess the caring burden and QoL among the caregivers of people with dementia, as well as to ascertain the relationship between QoL scores and burden. Our sample included 80 caregivers of people with dementia. Most of the caregivers (n = 59, 73.8%) had a higher level of caregiver burden. There was a negative correlation between caregiver burden scores and QoL. A higher level of caregiver stress and low QoL were experienced by caregivers of dementia patients. In developing countries like India, counseling, and education on home health care for people with dementia should be provided to reduce the burden and enhance the QoL of caregivers.

Original languageEnglish
Pages (from-to)191-204
Number of pages14
JournalHome Health Care Services Quarterly
Volume43
Issue number3
DOIs
Publication statusPublished - 8 Jan 2024

Keywords

  • caregiver burden
  • caregivers
  • Dementia
  • quality of life

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