Activities per year
People with learning disabilities are now enjoying a longer life expectancy than ever before as a result of enhanced medical and social interventions and improved quality of life. Some, particularly individuals with Down’s syndrome, are susceptible to dementia at a significantly younger age than the average age of onset in the rest of the population. Currently, there is limited guidance on how to talk to people with learning disabilities about dementia and, until such information is shared, individuals cannot be positioned as an authority on their own condition. The new model presented here suggests a way of supporting staff and families to have enabling conversations about dementia that centre on the person’s current situation, level of understanding and capacity.
|Number of pages||8|
|Journal||Learning Disability Practice|
|Publication status||Published - 2 Sept 2015|
- learning disability
- breaking bad news
- Down's syndrome
- intellectual disability
FingerprintDive into the research topics of 'Breaking bad news to people with learning disabilities and dementia'. Together they form a unique fingerprint.
- 1 Types of Public engagement and outreach - Public lecture/debate/seminar
International Summit on Intellectual Disability and Dementia with the purpose of developing a major international policy statement on a number of areas related to dementia and adults with intellectual disability, including human rights and the Convention on the Rights of Persons with Disabilities, nomenclature, advanced dementia, end-of-life care practices, aiding family caregivers, community dementia capable care practices, and advocacy for inclusion of persons with intellectual disabilty in national Alzheimer's plans.
Karen Watchman (Organiser)13 Nov 2016 → 14 Nov 2016
Activity: Other › Types of Public engagement and outreach - Public lecture/debate/seminar
- 1 Book
Jenny's diary: Supporting conversations about dementia with people who have a learning disabilityWatchman, K., Tuffrey-Wijne, I. & Quinn, S., 2015, Pavilion Books Group Ltd. 46 p.
Research output: Book/Report › Book › peer-reviewOpen Access