A cross sectional study of family caregiver burden and psychological distress linked to frailty and functional dependency of a relative with advanced dementia

Wilson de Abreu, Debbie Tolson, Graham Jackson, Nilza Costa

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Abstract

Psychological health of caregivers of people with dementia is a major public concern. This study sought to determine the relationship between caregiver burden, psychological distress, frailty and functional dependency of a relative with advanced dementia. Persons with dementia and their caregivers (102 dyads) participated in this Portuguese community based cross sectional study. Data gathering tools used were the Clinical Dementia Rating Scale, a sociodemographic questionnaire, the Zarit Burden Interview, the Brief Symptoms Inventory and the Edmonton Frail Scale. Alzheimer's disease was the most common type of dementia among the recipients of care, who showed moderate (42.2%) to severe (52.9%) dementia. Among them 35.3% exhibited moderate and 45.1% severe frailty. Caregivers reported moderate (76.5%) to severe burden (18.6%). Psychological distress was very high among them. Results show that people with dementia exhibited moderate (35.3%) or severe frailty (45.1%) and that a severe frailty was found in people with moderate dementia. An one-way ANOVA was conducted between GSI and some sociodemographic variables. ANOVA reached p < .01 for employment status of the caregiver, assistance and professional support, and psychiatric history; p=0.01 for caregiver age and years of caregiving. Although caregivers benefit from a straightforward oversight role and support offered by the multidisciplinary home care team, high levels of distress and associated burden were found, which might decrease their capacity to care for the person with dementia and their own health and well-being.
LanguageEnglish
JournalAging & Mental Health
Early online date2 May 2018
DOIs
StateE-pub ahead of print - 2 May 2018

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Caregivers
Dementia
Cross-Sectional Studies
Psychology
Analysis of Variance
Dependency (Psychology)
Health
Home Care Services
Psychiatry
Alzheimer Disease
Interviews
Equipment and Supplies

Cite this

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title = "A cross sectional study of family caregiver burden and psychological distress linked to frailty and functional dependency of a relative with advanced dementia",
abstract = "Psychological health of caregivers of people with dementia is a major public concern. This study sought to determine the relationship between caregiver burden, psychological distress, frailty and functional dependency of a relative with advanced dementia. Persons with dementia and their caregivers (102 dyads) participated in this Portuguese community based cross sectional study. Data gathering tools used were the Clinical Dementia Rating Scale, a sociodemographic questionnaire, the Zarit Burden Interview, the Brief Symptoms Inventory and the Edmonton Frail Scale. Alzheimer's disease was the most common type of dementia among the recipients of care, who showed moderate (42.2\{%}) to severe (52.9\{%}) dementia. Among them 35.3\{%} exhibited moderate and 45.1\{%} severe frailty. Caregivers reported moderate (76.5\{%}) to severe burden (18.6\{%}). Psychological distress was very high among them. Results show that people with dementia exhibited moderate (35.3\{%}) or severe frailty (45.1\{%}) and that a severe frailty was found in people with moderate dementia. An one-way ANOVA was conducted between GSI and some sociodemographic variables. ANOVA reached p < .01 for employment status of the caregiver, assistance and professional support, and psychiatric history; p=0.01 for caregiver age and years of caregiving. Although caregivers benefit from a straightforward oversight role and support offered by the multidisciplinary home care team, high levels of distress and associated burden were found, which might decrease their capacity to care for the person with dementia and their own health and well-being.",
author = "{de Abreu}, Wilson and Debbie Tolson and Graham Jackson and Nilza Costa",
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AB - Psychological health of caregivers of people with dementia is a major public concern. This study sought to determine the relationship between caregiver burden, psychological distress, frailty and functional dependency of a relative with advanced dementia. Persons with dementia and their caregivers (102 dyads) participated in this Portuguese community based cross sectional study. Data gathering tools used were the Clinical Dementia Rating Scale, a sociodemographic questionnaire, the Zarit Burden Interview, the Brief Symptoms Inventory and the Edmonton Frail Scale. Alzheimer's disease was the most common type of dementia among the recipients of care, who showed moderate (42.2%) to severe (52.9%) dementia. Among them 35.3% exhibited moderate and 45.1% severe frailty. Caregivers reported moderate (76.5%) to severe burden (18.6%). Psychological distress was very high among them. Results show that people with dementia exhibited moderate (35.3%) or severe frailty (45.1%) and that a severe frailty was found in people with moderate dementia. An one-way ANOVA was conducted between GSI and some sociodemographic variables. ANOVA reached p < .01 for employment status of the caregiver, assistance and professional support, and psychiatric history; p=0.01 for caregiver age and years of caregiving. Although caregivers benefit from a straightforward oversight role and support offered by the multidisciplinary home care team, high levels of distress and associated burden were found, which might decrease their capacity to care for the person with dementia and their own health and well-being.

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